Original Posting:
https://pmc.ncbi.nlm.nih.gov/articles/PMC5388361
2017
Medical and Surgical Treatment The primary goal of medical treatment is to strengthen bones and manage fractures. Physicians often use bisphosphonates, medications that help increase bone mass and can reduce the number of breaks. When bones are severely deformed or break repeatedly, orthopedic surgeons may perform surgery to insert metal rods (often telescopic ones that grow with the child) inside the bones to provide internal support and improve mobility.
Physical and Occupational Therapy Therapy is crucial for building independence. Physical and occupational therapists work on muscle strengthening, improving stamina, and preventing joint stiffness. They provide guidance on everything from safe handling of infants to selecting the right wheelchairs and modifying home or school environments so that patients can participate fully in daily activities.
Holistic and Emotional Support The study emphasizes that OI affects more than just physical health; it impacts emotional and social well-being. To support the whole person, a modern MDT includes several other key roles:
- Psychologists: Help families manage the anxiety, stress, and isolation that can come with a chronic condition.
- Social Workers: Assist with practical needs like housing, school support, and navigating financial benefits.
- Dieticians: Create nutrition plans to support bone health and prevent obesity, which can put extra strain on fragile skeletons.
- Specialist Nurses: Act as coordinators to ensure all parts of the team are working together and to help young patients transition smoothly into adult medical care.
Ultimately, this collaborative “gold standard” of care focuses on maximizing a patient’s independence and quality of life by putting the individual and their family at the center of all treatment decisions.
What This Means for OI Patients
For those living with OI, this study confirms that your healthcare should be about much more than just fixing broken bones; it should be a coordinated effort by a team that understands your unique physical and emotional needs. By utilizing a multidisciplinary team, you can gain access to specialized tools—from bone-strengthening medications to tailored exercise and psychological support—that help you maximize your independence and stay active in your community. This approach ensures that you are treated as a whole person, giving you the life skills and support needed to manage your condition effectively throughout every stage of life