HOW DO YOU PRONOUNCE THAT, AND WHY?
Well it's an IT thing, and the net was CREATED by IT folks (sorry former VP we have facts that you weren't part of it, but IT folks like secrets nd making
everything an abreviaton that most of the world wont understand is something they enjoy. So, FAQ (AKA FACK) are questions that get asked over and over by folks who are new to something and it happens almost everywhere in life. If you collect Beer cans, there is an FAQ I'm sure (who knows what a 'cone top' is?
So sit back, relax and read on, as always if you find something that you don't agree with let us know.
If you have a question that you think ABSOLUTELY needs to be added, please let us know.
In most cases we wont answer a question without scientific/medical research behind our answers, because there too many ideas running around about OI.
The one time where there may not be a Research Study behind it is if we discuss a survey that suggests a common community experience based answer.
FAQ1 - I have Osteogenesis Imperfeccta and I am ALWAYS the warmest person in the room, sometimes it could be freezing outside and I'm sweating?
I have OI and ALWAYS feeling HOT, is there some connection between the two?
Folks have been asking this question of their physicians for YEARS and the answer is pretty much the same across the board - 'No of course not, I'm sure your just imagining it'
I personally know I wasn't imagining anything as noted my wife and I spent Christmas with her extended family in Virginia, just off (100 yards?) the Potomac river and at least four feet of snow on the ground, and I needed to sleep with the window open. Really, to use the bathroom in the morning we had to break the ice on the commode but I slept with a sheet on. So we have all known that at least certain types of OI have SOMETHING that's generating heat