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alt.resources

Alternate Resources

We would LOVE to be able to claim that we are THE one stop show for OI information. Whether your a patientr, clinician or support staff.

We rally would.

BUT reality suggests that we need to be honest and let you know that in todays rapidly changing world of medical breakthroughs anyone claiming to BE a one stop shop, should take a step back and accept a few whacks from the HUMBLE stick.

Instead we will suggest that we are your BEST resource for anecdotal and clinical evidence that wse can build.

Becaus we balue your experiences and comments as high as those folks working in multi million dollar labs who may have never even MET someone with OI.

With that in mind we submit the alternate resource links:

RESEARCH LIBRARY: - A Great deal has changed and been discovered about OI and healthcare in general since the early 1970s when I started asking questions

Unfortunately, then like now, Doctors and scintists STILL like to throw in Ancient Greek and Latin just to demonstrate that they do indeed know things that we don't.

In order to combat that we have establihed the RESEARCH LIBRARY.

This is where WE get to demonstrate the hundreds of hours we have spent scouring the net and trying to make sense so that the common man can understand the researc and clinial trials, tests and whats happening and whats not. The best weapon in our scabbard is KNOWLEDGE.

If you were asleep During Sister Xaviera NukleWkens Sr. Latin Symposiam at Our Lady of Peretual Pain Prep school than we are here to help!

We will be organizng things for the 21st century chronologically by year, posting the title, year and link to the original research, where available, as well as a "plain english" summation and a paragraph b;urb that may catch your eye on social media.

So please sit back, put your reading glasses on, OR chheck out our YT channel as we will be posting as much research as we can convert there as wel.

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