We would LOVE to be able to claim that we are THE one stop show for OI information. Whether your a patientr, clinician or support staff.

We rally would.

BUT reality suggests that we need to be honest and let you know that in todays rapidly changing world of medical breakthroughs anyone claiming to BE a one stop shop, should take a step back and accept a few whacks from the HUMBLE stick.

Instead we will suggest that we are your BEST resource for anecdotal and clinical evidence that wse can build.

Becaus we balue your experiences and comments as high as those folks working in multi million dollar labs who may have never even MET someone with OI.

With that in mind we submit the alternate resource links: