Every day there are more and more questions being asked about OI. These questions come from Patients, Care Helpers, Physicians, Clinicians and those folks whose main priority if discovering NEW information.

Considering OI is a life altering genetic issue that occurs every 1 out of 10,000 live births, this should be important to EVERYONE.

Unfortunately many ideas on how to help folks living with OI, come up and not only have NO answer but have never been asked in a professionl forum. Asking thhose questions in those forums is the first step in getting a full blown study performed and thats what points scientists and Care Givers in the right direction for what could become cures or at the very least, medical recignition of issues thast WE all know about, but Dr's wont connect with.

Anytime you see a survey, if you fit in the parameters inm ANYway, vheck it out, see ho much YOU can help, right from where you are.